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July 19, 2026

Huntington's Disease Youth Organization

For more information about HDYO visit our website

www.hdyo.org

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Educating the Community

#HDCONNECT Retreat in Partnership with Factor-H
Nurturing Social Bonds
Bring Hope to Huntington’s Disease Families: Urge the FDA to Uphold Accelerated Approval
Caregiver Burnout Toolbox
Understanding HD Stigma
Collaborative HD Care
HDYO Camp Under 18
HDYO Camp 18 and Over
HDYO Camp
Impacts of Genetic Testing on Family Tree
Empowering Young HD Caregivers
#HDCONNECT Retreat
Decisions on Genetic Testing
Mental Health Toolkit
Understanding At-Risk Status
Understanding Gene Negative
Understanding Gene Positive
The Impact of Trauma
Strategies to Engage Young People
Signals to Notice from Young People
Parent And Guardian Involvement
Using Empathy
Understanding the Young Person’s Journey for HD Professionals
Conversation Starters for Young People
Brochures & Resources
2024 North American Camp
What is Huntington’s Disease?
The Basics of JHD
What Does It Feel Like to Have HD?
Research Video Series
History of HD
The HD Gene: Under the Microscope
HDYO Land
Breaking Down Barriers
Matt’s Chats

HD Information In Other Languages

Hva er Huntingtons sykdom?
ハンチントン病とは何ですか?
हंटिंगटन रोग क्या है?
ما هو مرض هنتنغتون؟
بیماری هانتینگتون چیست؟
ہنٹنگٹن کی بیماری کیا ہے؟
Vad är Huntingtons sjukdom?
¿Qué es la enfermedad de Huntington?
O que é a Doença de Huntington?
Cos’è la malattia di Huntington?
Qu’est-ce que la maladie de Huntington?
Wat is de ziekte van Huntington?
Was ist die Huntington-Krankheit?
Hvad er Huntingtons sygdom?

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

Kids
Teens
Young Adults
Parents and Family
JoHD
Friends
Professionals